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SMA fundraiser | Spinal Muscular Atrophy

Posted by Penny Hull on Tue, Aug 06, 2013 @ 10:08 AM

The Love, Hope & Strength fundraiser for Spinal Muscular Atrophy

Saturday, August 10, from 7-10pm

The Love, Hope & Strength fundraiser for SMA (Spinal Muscular Atrophy) is this Saturday, August 10, from 7-10pm at the Flanders Art Gallery (302 S. West Street, in Raleigh.)

Spinal Muscular Atrophy is the number one genetic killer of children under the age of two, and it affects hundreds of families in NC. This is the largest event in the Triangle dedicated to finding a cure. 

The silent auction at the event will be held in a setting with fine art, cocktails, live entertainment, and families who support the cause. Five-time Emmy Award winner, Debra Morgan of WRAL News, will serve as emcee for the Love, Hope & Strength Fundraiser.

You can read more about the event here: http://www.fsma.org/Fundraising/EventsCalendar/index.cfm?id=7704&eventRedirect=1&type=1154

The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers.

Spinal Muscular Atrophy (SMA) refers to a group of inherited diseases of the motor nerves that cause muscle weakness and atrophy (wasting). The motor nerves arise from the spinal cord and control the muscles that are used for activities such as breathing, crawling, walking, head and neck control, and swallowing. SMA is a rare disorder occurring in approximately 8 out of every 100,000 live births, and affecting approximately 1 out of every 6,000 to 10,000 individuals worldwide.


SMA affects muscles throughout the body. In the most common types, weakness in the legs is generally greater than in the arms. Sometimes feeding, swallowing, and respiratory function (e.g., breathing, coughing, and clearing secretions) can be affected. When the muscles used for breathing and coughing are affected and weakened, this can lead to an increased risk for pneumonia and other respiratory infections, as well as breathing difficulty during sleep. The brain’s cognitive functions and the ability to feel objects and pain are not affected. People with SMA are generally grouped into one of four types (I, II, III, IV) based on their highest level of motor function or ability. - copyright Families of SMA


Click here to learn more about Families of SMA.

Stanton Homes is a proud sponsor of the event, as one of the programs we support in conjunction with our dedication to helping families with accessible needs.  Stanton Homes is dedicated to employing the latest technologies and design expertise to help alleviate the hardships of immobility, ALS, loss of limbs, and other challenges. Click here for more information.

Tags: accessible builders, SMA, accessible homes, wheelchair accessible homes